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Cancer - Online Information Sources FAQ |
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THE CANCER FAQ
Please contribute to the FAQ! This is an evolving resource and is only as good
as you make it! If you have a source of online information about cancer that
is NOT listed above, nor referenced by any of the listed resources, please
contact me and let me know! I am eager to make this list as comprehensive
and up-to-date as possible. Please keep in mind that mention on this list
DOES NOT imply endorsement!
Good luck, God bless you, and KEEP FIGHTING. Informed, motivated patients
live longer!
TO AUTOMATICALLY RECEIVE THIS LIST:
Send an email to listserv@sjuvm.stjohns.edu and have 1 line in the
message body: afd add cancer faq
Maintainer: E. Loren Buhle, Jr. Ph.D.
Email: BUHLEL01@MCRCR6.MED.NYU.EDU
Revision Date: 4-Sept-1995
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Questions:
1. Where can I find information about cancer on the Internet?
2. What is the recipe for the "hot candy" to relieve mouth sores?
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ANSWER 1. ********* TABLE OF CONTENTS ***********
a. Announcements
b. CancerNet
c. Gopher and WWW Resource List
- Disease Specific Resources
- Government Sites
- Educational Institutions
- Dedicated Cancer Resources
- Other Resources
d. Commercial Online Resources
- Compuserve
- Prodigy
- America Online (AOL)
- NYU BBS for Brain Tumor Support and Research
- Other Online Services
e. Non-Commercial Online Resources
- FDA BBS
- Med Help International
- The Florida Coalition for Cancer Survivorship BBS
- FidoNet
f. Online library catalogs (to help find books)
g. NetNews (Usenet)
h. Shareware Programs via FTP
i. The Internet Health Science's Resources List
j. The Better Information Group
k. Online Mailing Lists (Listserves)
l. The BMT Newsletter
m. The Powerlines & Cancer FAQ
n. Free Drug Program
o. The Texas Cancer Data Center
p. LINCS
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-------------------
| *ANNOUNCEMENTS* |
-------------------
Clinical-Trial-Finder
---------------------
The purpose of the Clinical-Trial-Finder listserv is to help those
seeking clinical trials for any problem to communicate with hospitals
and other medical providers offering the same. The list will be
moderated. Medical facilities are urged to subscribe to the list and
post detailed descriptions of trials they are conducting or intend to
conduct. The more details given the better. Also, the trial's approval
by an appropriate authority should be shown.
Patients or caretakers should post as much information as they are
comfortable describing as to medical problems for which they are seeking
a medical trial.
Discussion in general of trials and medical problems should not be
posted to the list. The idea is to keep the bandwidth at a minimum so
that all interested will keep watch for postings without feeling
overburdened by too much mail.
To subscribe send to listserv@garcia.com
the message
subscribe ctf
Change in Ovarian Cancer Listserv (Sept 11, '95):
----------------------------------
1) new name: Ovarian (to cover all Ovarian issues, not just ovarian-ca)
2) listserv: listserv@sjuvm.stjohns.edu
3) how to subscribe: subject blank; message text should be:
subscribe ovarian First-name Last-name
4) owner: ovarian-request@sjuvm.stjohns.edu
5) Date available: approximately Sept 1 but may be delayed with the upgrades
being done at St. Johns; the old one will run
concurrently. This may take up to a week after Sept. 1
------
+++ OVARIAN PLUS +++
Gynecologic Cancer Prevention News
For all women and the people who love them
+++++++++++++++++
+ A newsletter dedicated to achieving and sustaining a significant
reduction in the number of women who die from OVARIAN CANCER and other
gynecologic cancers, through education about:
Prevention + Risk reduction + Screening + Early Detection +
Psychosocial issues + Cancer politics
The primary focus of
OVARIAN PLUS
is
ovarian cancer,
which kills more U.S. women than all the other
gynecologic cancers c o m b i n e d
+++
In the first issue:
Ovarian Cancer & Infertility: A.C. "CRAIG" EVANS JR., MD, PhD
Washington Cliffhanger: U.S. REPRESENTATIVE PATSY T. MINK
The Birthday Present From Hell: GINNIE LUPI
Uncle Sam Plays Politics with Ovarian Cancer: LAWRENCE E. GAWELL
Homicide Trial Set in Milwaukee Pap Smear Cases
+ Plus more news ! +
... Proudly accepting NO advertising ...
OVARIAN PLUS is published by Ceil Sinnex, a journalist. Sinnex brought
the neglect of ovarian cancer to the attention of U.S. Rep. Patsy T. Mink
in 1990, and backed Rep. Mink's successful drive to quadruple the
ovarian-cancer research budget at the National Cancer Institute, 1992-1995.
+++++++++++++++
+ OVARIAN PLUS Medical Advisors +
M. STEVEN PIVER, MD
Founder/Director, Gilda Radner Familial Ovarian Cancer Registry
Chief of Gynecologic Oncology, Roswell Park Cancer Institute
and
A.C. "CRAIG" EVANS JR., MD, PhD
Gynecologic Oncology Division
Duke University Medical Center
++++++++++
... No patronizing baby talk ...
OVARIAN PLUS
is mailed in full text quarterly to paid subscribers
$50 a year
($40 before September 30)
OVARIAN PLUS
P O BOX 498
PAAUILO HI 96776-0498
Ovarian Plus Online in synopsis only:
World Wide Web arrangements are being worked out;
Meanwhile, please check out these two Web sites:
http://www.cancercare.org/faq/cancer_faq.html
http://pairoducks.com
+++++++++
... And no baloney! ...
+ The only newsletter dedicated strictly to preventing
ovarian cancer and other gynecologic cancers. +
+++++++++++++++++++++++++ O + ++++++++++++++++++++++++++++++++
Email Request to: csinnex@hawaii.edu and include mailing address
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
------
http://www.quake.net/~acs/acs.html - American Cancer Society, Calif Div
------
http://www.nccf.org/ - National Childhood Cancer Foundation
------
http://wwwicic.nci.nih.gov/ - International Cancer Information Center (NCI)
------
http://otabbs.ota.gov/T202 - Office of Technology Assessment: Cost and
Effectiveness of Prostate Cancer Screening
------
http://www.dkfz-heidelberg.de/ - German Cancer Research Center (Eng/Germ)
------
http://www.ama-assn.org/ - American Medical Association
------
http://www.roxane.com/ - Roxane Pain Institute
------
http://www.eden.com/~myprscan/index.html - My Prostate and Me: Dealing with
Prostate Cancer
-------
http://www.ovinet.com/iasm/i001.htm The Institute for Advanced
Studies in Medicine. Nutritional and Prevention articles, free second
opinion, etc.
-------
http://www.lanminds.com/local/brain/trial.html - NEW LOCATION of brain
tumor clinical trails list
-------
http://www-med.stanford.edu/MedSchool/Oncology/index.html - Stanford
University Division of Oncology
--------
http://www.mol-usa.com/cancare/home.htm - 1995 Malaysia Year of Cancer
Awareness, a joint project done by CanCare and Malaysia Online
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---------------
| CancerNet |
---------------
CancerNet is by far the most comprehensive and up-to-date source of
information about cancer. It is maintained by the (United States) National
Cancer Institute. Included in this database is a well-maintained list of
other information sources, such as MEDLINE, so for most people this is THE
place to start. Sources of information that are listed in CancerNet
are (usually) not repeated in this FAQ.
Send e-mail to:
CancerNet@icicc.nci.nih.gov
No longer: cancernet@icicb.nci.nih.gov [OBSELETE!!]
with no subject, and the word "help" as the message. They will send you a
message explaining how to use the system. They can also be reached by calling
the voice line: 1-800-4-CANCER. For those without email access, they can send
out brochures and FAX'es.
CancerNet is available through voice phone, traditional mail, FAX, e-mail,
gopher, ftp, and World Wide Web (WWW). Contact CancerNet via e-mail or
voice phone for current access instructions.
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--------------------
| Gopher and WWW |
--------------------
To get the most current Gopher/World Wide Web addresses of interest,
it's best to just get on and start searching. To help you get started,
here's a list of servers that others have found useful. The list may
not be up to date, but it should provide some good starting points.
If you don't know what Gopher and WWW are, look for some FAQ's in the
new users newsgroups or the gopher/WWW newsgroups, or contact your local
help desk or system administrator. A WWW resource address is identified
by having "http://" in the beginning of the address. A gopher server
has a "gopher://" at the beginning of the address.
**** Disease Specific Servers ****
==================================
Breast Cancer Servers
---------------------
http://nysernet.org/breast/Default.html - Breast Cancer Information
Clearinghouse
http://www.execpc.com/~media/breast.html - Breast Self-Exam training
material from MED.I.A. Inc Medical Interactive Applications...very
good graphics!
http://www-med.stanford.edu/CBHP - Community Breast Health Project
in Palo Alto, California
http://nysernet.org/bcic/numbers/Y-ME.html - Hotline for Breast Cancer Info
http://infoweb.magi.com/~bcanet/ - Breast Cancer Action in Ottawa, Canada
http://www.pmedia.com/Avon/avon.html - Avon's Breast Cancer
Awareness Crusade
http://web.mit.edu/pamurray/www/artbc.html - A personal
perspective on breast cancer and reconstruction shared in pictures
and words.
http://www.med.nyu.edu/KCCC/PROTOCOLS/navelbine/contents.html - Navelbine
Clinical Trial Information for Breast Cancer (NYU Medical School)
gopher://nysernet.org:70/00/BCIC/support/wccplist - List of Women's Cancer
Groups in the United States and Canada
http://www.primenet.com/~dean/lymph.html - National Lymphedema Network
http://login.dknet.dk/~pho/abmt3.html - Patient's Experience with ABMT for
breast cancer.
http://www.primenet.com/~iwpp/sterling.html - Sterling Clinical Resources
Clinical Trial information - breast cancer
Gynecologic Oncology
--------------------
http://gynoncology.obgyn.washington.edu/ - Gynecologic Oncology Server at the
University of Washington in St. Louis
http://www.monitor.net/monitor/9-2-95/heal.html - Patient, Heal Thyself
Lymphomas
---------
http://cancer.med.upenn.edu/disease/lymphoma1 - OncoLink section on lymphoma
http://gdbwww.gdb.org/omim-bin/omim/bin/omimx?236000" - Genetics of Hodgkins
http://www.dircon.co.uk/adastra/amanda/amanda1.html -
Amanda is 28 and has just been diagnosed with Hodgkin's disease. She
has put together a page containing her own story and all the major links to
sources of Cancer information on the WWW including Cancernet, Oncolink
etc.
Multiple Myeloma Servers
------------------------
http://www.comed.com/IMF/imf.html - International Myeloma Foundation
Melanoma
--------
http://www.cs.man.ac.uk/~foremand/charity.html - UK cancer charity the "June
Foreman Melanoma Research Fund"
http://www.maui.net/~southsky/introto.html - "A Brief Introduction to Skin
Cancer, Ultra Violet Light, and the Hole in the Earth's Ozone Layer.
What does it mean to you?"
Brain Tumors
------------
http://www.halcyon.com/sbarnes/trial/trial.html - This is a list of
clinical trials and noteworthy treatments for adult glioblastoma
multiforme (a form of brain cancer).
NEW LOCATION: http://www.lanminds.com/local/brain/trial.html
http://neurosurgery.mgh.harvard.edu/mghns-hp.htm - Mass General Neurosurgical
Service
http://neurosurgery.mgh.harvard.edu/nonc-hp.htm - Mass General Neuro-oncology
Service
http://pubweb.acns.nwu.edu/~lberko/abta_html/abta1.htm - American Brain
Tumor Association Home Page
http://keck.ucsf.edu/ - W.M. Keck Foundation Center for Integrative
Neuroscience (UCSF)
http://www.usc.edu/hsc/neurosurgery - Univ. Southern California
Neurosurgery
http://www.econ.uiuc.edu/~emma/home.html - Emma Koenkev's home page (brain
tumor patient).
http://www.med.harvard.edu/AANLIB/home.html - Whole Brain Atlas
http://www.naric.com/naric/home.html - The National Rehabilitation
Center Home Page
Prostate Cancer
---------------
http://www.comed.com/Prostate/index.html - CoMed's Prostate Cancer WWW site
http://www.eden.com/~myprscan/index.html - My Prostate and Me: Dealing with
Prostate Cancer
http://otabbs.ota.gov/T202 - Office of Technology Assessment: Cost and
Effectiveness of Prostate Cancer Screening
Emotional Support, Bereavement
------------------------------
http://www.rivendell.org/ - Rivendell Resources sponsors Griefnet, a
collection of resources of value to those who are experiencing loss and
grief.
http://asa.ugl.lib.umich.edu/chdocs/support/emotion.html - Internet
Resources for Physical Loss, Chronic Illness, and Bereavement
http://www.calypte.com/cancer/index.html - ChronicIllnet's section on cancer
http://www.dgsys.com/~tgolden/honor.html - A place to honor grief
http://www.islandnet.com/~deathnet/open.html - DeathNet, an
international archive specializing in all aspects of death and
dying -- with a sincere respect for every point of view.
General Cancer & Cancer-Related Servers
=======================================
Government Servers
------------------
http://www.arc.com/cancernet/cancernet.html - NCI PDQ in HTML format
http://wwwicic.nci.nih.gov/ - International Cancer Information Center (NCI)
http://www.nih.gov/ - NIH WWW server
http://www.nci.nih.gov/ - The National Cancer Institute's WWW (USA)
http://www.nlm.nih.gov/ - HyperDOC at US National Library of Medicine
http://www.nlm.nih.gov/top_level.dir/nlm_online_info.html - NLM Online
Information Services
http://www.nlm.nih.gov/factsheets.dir/grateful.html - Grateful Med Factsheets
http://cedr.lbl.gov:80/~houser/cancer/calif94/calif94.html
Cancer Incidence and Mortality by Race/Ethnicity in California, 1988-1991
http://www.iarc.fr/ - International Agency for Research on Cancer
The International Agency for Research on Cancer (IARC) was established
in 1965 by the World Health Organization. IARC's mission is to
coordinate and conduct research on the causes of human cancer, and to
develop scientific strategies for cancer control. The Agency is
involved in both epidemiological and laboratory research, and
disseminates scientific information through meetings, publications,
courses and fellowships.
http://atsdr1.atsdr.cdc.gov:8080/cancer.html - US Dept of Toxic Subtances
and Disease Registry (ATSDR) - public health programs concerning
carcinogens
http://www.fda.gov/ - Food and Drug Administration (USA)
http://www.epa.gov/ - Environmental Protection Agency (USA)
http://www.niehs.nih.gov/ - The National Institute of Environmental Health
Sciences (USA)
http://www.ohre.doe.gov/ohre/home.html - US Department of Energy
Office of Human Radiation Experiments [CHANGED]
gopher://gopher.nih.gov - NIH gopher server
Educational Institution Servers
-------------------------------
http://www-med.stanford.edu/MedSchool/Oncology/index.html - Stanford
University Division of Oncology
http://www.fhcrc.org/ - The Fred Hutchinson Cancer Research Center
gopher://gopher.unmc.edu/11/Pediatrics - Pediatric Bone Marrow Transplant
Program at Unviersity of Nebraska
http://www.fccc.edu/ - Fox Chase Cancer Center
http://cancer.med.upenn.edu/ - OncoLink, from the U. of Pennsylvania
http://asa.ugl.lib.umich.edu/chdocs/cancer/CANCERGUIDE.HTML -
Quick Information about Cancer for Patients and their Families (an index
of many of the other resources on this list)
http://info.md.huji.ac.il/cancer/journal.html - Le Journal du Cancer
http://bigmac.mskcc.org/ - Sloan-Kettering Cancer Center (New York)
http://www.jci.tju.edu/ - Thomas Jefferson Cancer Center (Philadelphia)
http://www.stat.washington.edu/TALARIA/TALARIA.html - Hypermedia Clinical
Practice Guidelines for Cancer Pain
http://utmdacc.uth.tmc.edu/MDA/mdainfo.html - The University of Texas
M. D. Anderson Cancer Center
http://fs2.liv.ac.uk/crconcology.html - The University of Liverpool
CRC Oncology Research Unit
http://daisy.moffitt.usf.edu/ - H. Lee Moffitt Cancer Center Home Page
http://www.med.nyu.edu/KCCC/HomePage.html - NYU Kaplan Comprehensive
Cancer Center
http://www.dkfz-heidelberg.de/pet/home.htm - German Cancer Research Center,
Application of Positron Emission Tomography in cancer research
http://asa.ugl.lib.umich.edu/chdocs/support/emotion.html - Emotional
Support Resources
http://www.cancer.med.umich.edu/ - University of Michigan Comp. Cancer Center
gopher://cancer.med.upenn.edu - OncoLink, via gopher
gopher://utmdacc.uth.tmc.edu - M.D.Anderson (cancer center)
gopher://gopher.dfci.harvard.edu - Dana-Farber (cancer center)
gopher://bigmac.mskcc.org - Sloan-Kettering (cancer center)
gopher://gopher.ncc.go.jp/ - National Cancer Center Tokyo
gopher://istge.ist.unige.it - IST (Nat Inst for Cancer Research) (Italy)
gopher://serversun.mdv.gwdg.de/ - GWDG Goettingen
gopher://med-gopher.stanford.edu/ - Stanford medical center
Dedicated Cancer Resources
--------------------------
http://www.quake.net/~acs/acs.html - American Cancer Society, Calif Div
http://bcn.boulder.co.us/health/cancer/pathology.html - A Biopsy Report:
A Patient's Guide
http://www.ncgr.org/ncgr/ncgr.html - The National Center for Genome Resources
(NCGR) would like to announce our new Web pages regarding the Ethical, Legal,
and Social Implications (ELSI) of biotechnology.
http://www.nccf.org/ - National Childhood Cancer Foundation
http://cois.com/candle/ - CandleLighters Childhood Cancer Family Alliance
Candlelighters CCFA is a non-profit self-help group composed of families of
childhood cancer, community volunteers, and healthcare professionals.
gopher://gopher_uicc.who.ch/ - International Union Against Cancer
http://www.mol-usa.com/cancare/home.htm - 1995 Malaysia Year of Cancer
Awareness, a joint project done by CanCare and Malaysia Online
http://www.meds.com/ - Medicine OnLine provides healthcare professionals
and consumers with in-depth educational information about specific
diseases. Medicine Online debutes with more than 600 pages of original
and current cancer infomation. This service also includes Listserve
discussion groups for both healthcare professionals and patients.
http://telescan.nki.nl/ - TeleSCAN -- Telmatics Services in Cancer (European)
TeleSCAN is the first European Internet service for Cancer research,
treatment and education providing a hypermedia (World Wide Web)
interface to primarily European information resources and services
related to Cancer. TeleSCAN is produced by the MARIA Project of the EU
http://www.iarc.fr/ - International Agency for Research on Cancer
http://www.savba.sk/logos/journals/ap/neohome.html - NEOPLASMA
Journal of Experimental and Clinical Oncology
Edited by Cancer Research Institute, Slovak Academy of Sciences,
Bratislava, Slovak republic
http://bcn.boulder.co.us/health/cancer/canguide.html -CancerGuide: Steve
Dunn's Cancer Information Page
http://www.charm.net:80/~kkdk/ - Darrel Kilius in Baltimore, MD Cancer
Patient Resource List, with an emphasis on sarcomas
http://infoventures.microserve.com/ - EMF-Link (ElectroMagnetic Forces)
http://access.digex.net/~mkragen/cansearch.html - CANSearch: A
Guide to Cancer Resources on the Internet (National Coalition for
Cancer Survivorship)
http://www.well.com:80/user/cynsa/tom/tom12.html - A Memorial to Tom Mandell
and his interaction with cancer, constructed by William Calvin
(TIME Online)
Other Resources
---------------
http://www.roxane.com/ - Roxane Pain Institute
http://www.cc.emory.edu/WHSCL/medweb.oncology.html - MedWeb:Oncology
http://www.pic.net/uniloc/acctx - Arlington Cancer Center (Dallas/Ft Worth)
http://brain.psyc.uow.edu.au/usenet.guide.html - List of Psychosocial &
Support newsgroups
http://www.mcc.ac.uk/pharmacy/ - PharmWeb: Pharmacy Information Resources
http://www.med.umich.edu/trans/sandoz/index.html - Sandoz's WWW site, mostly
containing information on transplantation and cyclosporine
http://www.informatik.uni-rostock.de/HUM-MOLGEN/ - Human Genetics WWW in
conjunction with the HUM-Genetics Listserve
http://infonet.welch.jhu.edu/advocacy.html - Patient Advocacy Numbers
http://www.icsi.net/Medicine - List of Medical Resources
http://dem0nmac.mgh.harvard.edu/hospitalweb.html - HospitalWeb, a list of
WWW hospital sites on the Internet
http://infoventures.microserve.com/ - EMF-Link, information on biological
and health effects of electric and magnetic fields (EMF)
http://mmp.dgsys.com:80/special/ - SpeciaLove, a resource devoted to
patients & children with cancer to facilitate networking. This resource
is oriented to the family aspects of childhood cancer. Special Love, Inc.
started in 1983 by Tom and Sheila Baker, who lost their 13 year old
daughter to leukemia.
http://wombat.doc.ic.ac.uk/bone-marrow/index.html - The Anthony Nolan
Bone Marrow Trust, a leading centre for research and also runs the UK
register of potential donors. The more people there are on the register,
the better the chance of finding a compatible donor. This site references
other BMT international BMT sites.
http://www.tiac.net/users/jtward/index.html - The Multimedia Medical
Reference Library.
http://www.gblhorizon.com/mktplace/share.html - American Share
Foundation. This organization is involved in organ and tissue
donation and transplant.
http://pharminfo.com/ - PharmInfoNet(tm) is devoted to delivering useful,
up-to-date, and accurate pharmaceutical information to pharmacists,
physicians, and patients. A section of Medical Sciences Bulletin deals
with reviews of oncology drugs.
http://www.pps.ca/pps.htm - Total Pricing Systems Inc. has developed the "PPS
On-Line System". Its goal was to develop a flexible and extensible
system to present pharmaceutical information to the medical community
and the future home Healthcare market.
http://www.america.com/~jpringle/acahome.html - National Community of
Charitable Aviators. The Air Care Alliance is a nationwide
association of humanitarian flying ACA members help needy patients
travel to facilities where they are able to receive medical attention
they would otherwise do without.
http://www.webcom.com/~lef/index.html - Life Extension Foundation
The Life Extension Foundation is dedicated to the pursuit of a longer,
healthier lifespan. We provide our members with information about the
latest life extension research, products and therapies.
http://inca.gate.net:80/~goodwin/ - Goodwin Institute for Cancer Research
http://www.webcom.com/~sease/kombucha/kombucha.html - Kombucha Home Page
http://catalog.com/bri/bri.htm - Burzynski Research Institute home page
(home of the Antineoplastons - alternate medical info), including:
* General Information About Brain Tumors
* Clinical Trials for Adults with Brain Tumors
* Clinical Trials for Children with Brain Tumors
* Theory and History Behind Antineoplastons
* National Cancer Institute Report on Antineoplastons
[Address: Burzynski Research Institute, 12000 Richmond Ave, Houston, TX 77082
Phone: 713-597-0111, FAX: 713-597-1166]
http://www.ovinet.com/iasm/i001.htm The Institute for Advanced
Studies in Medicine. Nutritional and Prevention articles, free second
opinion, etc.
http://www.homepage.com/mall/gerson/gerson.html - Gerson Therapy
http://www.catalog.com/war/simone.html - Simone's Shark Cartiledge
http://www.can.net/herb/herb.html - Source for Rare & Exotic Herbs [CHANGED]
ftp://ftp.sura.net/pub/nic/ - Health sciences resources list
gopher://weeds.mgh.harvard.edu/ - Global Biological Information Servers
at Harvard - also by topic.
http://lablinks.com/sumeria/cancer.html - Alternate views of cancer
treatment, chemotherapy, electromagnetism...
=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=
--------------------------------
| Commercial online services |
--------------------------------
Many online services have resources of interest to ca patients:
America Online (AOL):
American Cancer Society Online (Keyword: ACS)
Scientific American Cancer Journal (Keyword: Cancer J SciAm)
Online Support Groups:
"Living with Cancer", Sundays 7 PM EST
"Cancer Survivors", Mondays 10 PM EST
"Loved ones of Cancer Survivors", Tuesdays 7PM EST
To get to the forum room, go to the ACS area
(Keyword: ACS or keyword: CANCER) and
select the Health and Medical Chat icon.
COMPUSERVE:
Cancer Forum - GO CANCER
Consumer Reports Drug Database - GO DRUGS
Health Database Plus - GO HLTDB
Knowledge Index - GO KI
MedSig Forum - GO MEDSIG
NORD Services/Rare Disease Database - GO NORD
Paperchase/MEDLINE - GO PAPERCHASE
Physician's Data Query - GO PDQ
PRODIGY:
Medical Support Board
TOPICS:
CANCER
OTHER (breast implants)
The NYU BBS for Brain Tumor Support and Research
------------------------------------------------
The head of Neurosurgery at NYU set up a commercial bbs system for
brain tumor sypport and research. It is called: Brain tumor on-line.
For information, call voice: 800-785-3312. It is pretty new, and not
many people are on it yet, but there are a few doctors from NYU and
the Mayo clinic - so it is a good source of info if you have a brain
tumor.
Other Online Services
---------------------
At the time this FAQ was updated, no one has commented on the
quality of the cancer forums on other online services, but such
comments would be welcome.
To Contact A Commercial Online Service Provider:
------------------------------------------------
To start an account, contact the service of your choice. Each
service can be contacted by voice through an 800 number. Call
the 800 directory service (voice) at 800-555-1212 for the 800
number of the service you would like to try. Most services offer
free or reduced-cost service for the first month of use. You
might want to check recent computer-related magazines for
special offers and coupons.
=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=
-----------------------------------
| Non-Commercial online services |
-----------------------------------
The FDA BBS
-----------
For information on specific drugs, you might try the FDA BBS
(U. S. Food and Drug Administration's Bulletin Board System).
Using the telnet facility, telnet to "fdabbs.fda.gov", and
login as "bbs".
Technical Support is available for the FDA BBS System from
7:00 A.M. to 7:00 P.M. EST Monday through Friday. For support,
contact the Parklawn Computer Center (PCC) at (301)443-7318.
If you are looking for a specific report or article, contact
the FDA Press Office at (301)443-3285.
MED HELP INTERNATIONAL
----------------------
MED HELP INTERNATIONAL
6300 North Wickham Road
Suite 130, Box 188
Melbourne, FL 32940-2029
Voice: (407) 253-9048
Fax: (407) 253-1819
E-mail: staff@mhli.netusa.net
BBS: (516) 423-0472
Med Help International is a non profit organization which provides
medical information written in non-technical terminology in order to
support patients and their families who have been struck by the tragedy
of serious illnesses.
We are comprised of an all-volunteer staff of physicians and other
health care professionals who are electronically connected.
Med Help has made available to the public our computerized system
whereby people may obtain information that is on the system at no
charge.
The system may be accessed via Internet (ftp, telnet or http) to:
via WWW: http://medhlp.netusa.net/
telnet medhlp.netusa.net
ftp medhlp.netusa.net
Or via dial-up (modem) to: (516) 423-0472 (N81- ANSI)
The Florida Coalition for Cancer Survivorship BBS
--------------------------------------------------
Date: Sun, 18 Sep 1994 11:13:22 EST
From: "Drew H. Wolfe 813-253-7233"
The Florida Coalition for Cancer Survivorship BBS, FCCS BBS, is a new BBS
devoted to the needs and concerns of cancer survivors, their family
members, and oncology health care professionals. Highlights of the
FCCS BBS include:
NCI's PDQ and CancerLit, hundreds of other cancer-related files and
shareware, forums devoted to many different areas of cancer (disease
specific, cancer support and support groups, message bases for oncology
health care professionals), a database where you can post or read
cancer stories, a database of tumor images, . . .
You can access the FCCS BBS at the following toll free number:
(800) 816-2744. Shortly, the FCCS BBS will connected to FidoNet and
Internet. For more information contact Drew H. Wolfe,
wolfed1@mail.firn.edu.
-----------
| FidoNet |
-----------
Formerly known as the Cancer-Leukemia Echo on Fido, 'Survivors' is on
the Fido backbone and is available to any BBS that receives any FIDO
echos. Check with your sysop about getting it. It is no longer just
for Cancer or Leukemia patients. It was started by a couple whose
daughter was diagnosed and treated for Leukemia. They found this
method of getting and exchanging information helpful. The echo now
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